Be quiet and stay still!

The single biggest impact of Karen’s stroke on her children is sensory overload. After an initial period of rehabilitation Karen has no visible deficits from her stroke. This makes it hard for her children and others to understand how difficult it is to care for her children, socialise and participate in activities others take for granted.

Many of the places primary school aged children like to go, like adventure playgrounds; indoor swimming centres; fun parks; zoos and museums; ice and roller skating rinks; extra curricular activities and toy shops, all cause Karen to have a meltdown. Her children having friends over to play or having mum as a parent helper at school or scouts, are rare events. It just knocks Karen around too much.

Instead Karen’s children spend most of their time at home, where Karen is constantly telling them to:

‘Be quiet’, ‘Turn the television down’, ‘Turn off the sound on your electronic game’ , Don’t touch me’ and ‘Stay still’. Just ‘Shhhhhh!’ and ‘Stop!’

Karen’s seven year old daughter says, ‘It’s not my fault you had a stroke!’

Ingrid also manages sensory overload as a result of her MS.

Our My mummy has a stroke too’  blog about sensory overload, is our most shared blog, so we know this is an issue for many of you too. The kidstrokemotion team know just how you and your children feel. Sensory overload is most commonly associated with children with Autism Spectrum Disorders. This two minute animation gives a glimpse into sensory overload; only in real life it doesn’t last for two minutes! It is made from the perspective of a child, but for parents who have had a stroke and are experiencing sensory overload, it might be a useful resources to help your children to understand why you are constantly telling them to ‘Be quiet’ and ‘Stay still’!

Sensory Overload (Interacting with Autism Project) from Miguel Jiron on Vimeo.

Would your children like to participate in kidstrokemotion and see their own drawings animated? Here’s how.


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