Participate

This project cannot exist without the participation of families affected by stroke. We need you!

To participate in the project you simply need to:

    • DRAW –  Sit down with your child and invite them to draw a picture or pictures to show their feelings about Dad or Mum’s stroke.
    • RECORD –  Have a conversation with your child about their feelings and record it using a phone or digital voice recorder.
    • SEND – Send us your interview, drawings and a completed consent form, and the creative team at Kidstrokemotion will do the rest! Your child’s interview and artwork will become part of an animated film that will help other kids just like them.

Want to participate? More information below.

What to do

Sit down with your child and invite them to draw a picture or pictures about how they feel about Dad or Mum’s stroke. While they’re drawing, record a conversation with them about their feelings. The drawing and the talking might occur at the same time or separately – whatever feels natural. If your child wants to draw and not be interviewed, that’s fine. If your child wishes to talk but not draw, that’s okay too.

Guidelines for drawing
  • All drawings should be on unlined white paper.
  • Only draw on one side of the paper.
  • Use pencils or crayons for the drawing. This will help us maintain a consistent aesthetic throughout the animation.
Guidelines for The recording

There are plenty of easy ways to record your conversation with software you probably already have on your phone or computer. If you’re unsure how to do this, please do a quick Google search for how to record a voice memo with your particular device. We’ve linked to some handy general tutorials on the resource page. 

general recording tips
  • Try to have the conversation in a quiet room. Turn off air conditioners and heaters.
  • Try to record your conversation in a room with carpet and soft furnishings, as it will reduce the amount of reverberation and result in a clearer recording.
  • Place the recording device close to the person speaking.
  • Do a test recording before your conversation to ensure the device is working and is close enough to pick up the conversation at an audible level.
  • Don’t move the microphone around too much during the conversation. If you need to adjust the position, do it during a break in the conversation.

There’s no need to edit your audio file or stop and start the recording during the conversation. Just send in your entire file and the production team will look after the editing. Just press record at the start of your conversation and let it roll – that way it’s easy for you to have a natural conversation with your child at a pace that’s appropriate for both of you.

Send the recording to kidstrokemotion@yahoo.com. Please include sufficient identifying information so the recording can be matched to the completed consent form and drawing if they’re being sent separately.

Interview questions

The aim of kidstrokemotion is for children of stroke survivors to talk about their feelings, so make the conversation as relaxed as possible. The following questions are suggestions to help with your interview. If your child is uncomfortable answering any questions, please don’t pressure them or ask any further questions. Your child’s emotional wellbeing is paramount.

How does it feel when Dad/Mum has a stroke and they are in hospital?

How does it feel when Dad/Mum comes home from hospital?

How does it feel now?

The questions above ask a child how does ‘it’ feels rather than how do ‘you’ feel. This allows children to talk about the topic in a general way, without necessarily revealing their own feelings. 

How do you feel about Dad/Mum’s stroke? Why?

What is the best thing about having a dad or mum who has had a stroke?

What is the worst thing?

How has your dad/mum’s stroke affected your life?

Are there any positives that have come out of your family’s experience of stroke?

Are there any other ways that your life has been affected by your dad/mum having a stroke?

What are the ways you’ve learnt to cope? How have you managed to get through?

Do you have any advice for other kids?

Tell me about your drawing

Emotional support

In participating in this project, a child may express feelings that their parent was not aware of. These tips may help you respond to your child’s needs:

  • When you sit down with your child so they can draw and talk about their feelings, choose a quiet location where you won’t be interrupted.
  • Choose a time of day when you and your child are fresh and alert.
  • Choose a day when you have minimal plans so you’re able to give your child the support they might need.

It is beyond the scope of this project to offer children professional psychological support, but parents might choose to seek out professional therapy or counselling for their child.

The following resources explain a child’s reaction when a parent has a stroke. They also contain useful strategies to assist and support your child.

Acquired Brain Injury Outreach Service – Support for Families

Stroke Foundation – Supporting Children and Grandchildren

SEND

POST Completed drawings and consent form to be posted to:

kidstrokemotion

PO Box 1699,Preston South, Victoria. 3072. Australia.

If posting your child’s drawing please place the drawing between sheets of cardboard so that it doesn’t get bent and place it in a plastic sleeve to protect it in case of rain.

EMAIL drawings, recording and consent form  to: kidstrokemotion@yahoo.com

Scan artwork  with a minimum 300dpi saved as jpg, tiff, or pdf.

Note: Submitted drawings and words will be used selectively in the creative process. Not all submitted material will be used in the finished video. Children’s voices might be used to explain the feelings shown in another child’s drawing. Or a child’s drawing might be shown with a different child talking. Our intention is to be authentic to the feeling being expressed, but also have creative freedom to convey the children’s messages in the most effective way possible.

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6 thoughts on “Participate

  1. Is just for children whose parents have had a stroke? My children had to deal with their grandfathers stroke. Although it was their grandad it still had a large impact on their life.

    • We agree Tania. The impact of a grand parent’s stroke can be really significant and the grieving emotions are the same. Our primary target is kids of stroke survivors, but we’d love your children to participate. Thank you so much for your interest. Best wishes to you and your family.

  2. Hello to anyone who reads this as I urge you all to get involved. Patrick, my then 11 year old son, almost 18 months ago now, found me on the floor after I suffered a stroke. We spoke about it often afterwards and as my recovery got much better with time, we talked about it less. It was not until Karen asked for drawings that I discussed it again with him. I had no idea Patrick had been drawing faces to depict how he felt abot my stroke. Last weekend we conducted the interview and he did the drawings. We both learned a lot during that time and it was therapeutic for us both, in addition to knowing that we could help other kids in a similar position to Patrick. It may be hard to do, but please try and support this as you may also be surprised what you can get out of the experience. Thanks. Shelagh

    • Shelagh. Thank you so much for your comment and for participating with Patrick. We’re really looking forward to sharing Patrick’s drawings and the things he spoke about when you talked to him. We think other kids will really benefit from Patrick’s contribution.

  3. Hey there, I am so glad to see people out there recognising that it is not easy for kids who have to see their parents brain injured and are giving them support. I am currently 18 years old but when I was 3 my dad had a serious stroke and has been paralysed since. As a kid I didn’t really understand what was going on, I would be upset about why my dad was not like all the others and I just couldn’t understand why, it made me grumpy at him. Once I was older I felt so bad about feeling this way. Kids truly need support and to know that there is someone else out there who understands and that they are not the only ones going through this. I am truly so glad to see that kids who have to go through seeing their parents brain damaged are getting support! I know it will make a huge difference to them, such a great campaign!

    • Hi Natasha. We’re sorry for your experience. We’d love you to participate if you’re interested. Thank you for your comment. It truly means a lot to us. Sending our love to you and your dad.

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